优化癌症患者的护理服务

Integrating Patient Awareness of Evidence-Based Care,Engagement in Key Decision-Making Points, andShared Decision-Making SEPTEMBER2 0 2 5 Introduction With cancer treatment evolving rapidly through medical advances, the value ofpatient-centered care is being increasingly recognized — not only in academicliterature, but also in clinical practice — by patients, patient advocacy groups, andthe broader healthcare ecosystem. Despite this growing awareness, achievingthis type of care remains a challenge, with several barriers preventing theoptimal involvement of patients in their cancer care journey. This report examinesthree key elements of patient-centered care and proposes actionable strategiesto the current barriers, ultimately aiming to enhance patient engagement andimprove clinical outcomes. Each chapter in the report assesses the current statusof these elements raising patient awareness ofpatient-facing clinical guidelines, engaging patients andcaregivers at pivotal decision-making points along thecare pathway, and empowering shared decision-making.Each of these areas offer opportunities for enhancingpatient health. These chapters also lay out the impactof the suboptimal status of these elements and proposerecommendations to improve the existing situationbased on expert input. This report was independently produced by the IQVIAInstitute for Human Data Science, incorporating anUnmet Cancer Needs Sentiment Analysis performedby Outcomes4Me in collaboration with AstraZeneca,insights from a patient advocacy expert roundtable,and additional IQVIA research. The report was fundedby AstraZeneca. Find Out More If you wish to receive future reports from the IQVIAInstitute for Human Data Science or join our mailing list,visit iqviainstitute.org. MURRAY AITKENExecutive DirectorIQVIA Institute for Human Data Science REFERENCING THIS REPORT Please use this format when referencing content from this report:Source: IQVIA Institute for Human Data Science. Optimizing Care Delivery for Patients With Cancer: Integrating Patient Awareness of Evidence-Based Care, Engagement in Key Decision-Making Points, and Shared Decision-Making, September 2025. Available from www.iqviainstitute.org ©2025 IQVIA and its affiliates. All reproduction rights, quotations, broadcasting, publications reserved. No part of this publication may be reproduced ortransmitted in any form or by any means, electronic or mechanical, including photocopy, recording, or any information storage and retrieval system, withoutexpress written consent of IQVIA and the IQVIA Institute. Optimizing Care Delivery for Patients With Cancer Table of Contents Overview2Key elements of patient-centered care4Research methodology5Impact of limited patient awareness of patient-facing guidelines6Impact of low involvement of patients and caregivers in key decision points9and approaches to address barriersImpact of limited shared decision-making12Conclusion16References17About the authors21Acknowledgements23About the Institute24 Overview Optimal patient-centered cancer care consists ofthree key elements, namely raising patient awarenessof patient-facing evidence-based clinical guidelines,engaging patients and caregivers at pivotaldecision-making points along the care pathway, andempowering shared decision-making. However, despitegrowing evidence of the importance of these elements,and of incorporating patient voices into care decisions,several barriers persist, preventing meaningfulengagement and optimal care output. Experts from the roundtable highlighted that thereare moments along the cancer care continuum wheremore active conversation between patients and theirhealthcare systems is needed. These moments require athoughtful approach that fosters self-advocacy withoutoverwhelming patients with information. Additionalresearch conducted by IQVIA highlights that patientswant to be active participants in their care. However,involving patients and caregivers in key decisionsalong the care pathway can be challenging. The lackof patient and caregiver involvement can result inoverlooked decision points and patient concerns,missed opportunities for timely intervention, increasedfinancial burden, anxiety and lower quality of life, andfragmented care pathways. An analysis of patient-provider communication andexpert perspectives from a patient advocate roundtablehighlight a significant gap in patients’ and caregivers’awareness of patient-facing clinical guidelines, eventhough healthcare professionals (HCPs) commonlyuse guidelines to inform their recommendations andtreatment decisions. Based on the analysis of patientmessages and questions from the Outcomes4Me data,specific mentions by patients of patient-facing treatmentguidelines, even among this engaged population, weregenerally absent. This lack of understanding can lead tomisalignment on treatment goals resulting in increasedhealthcare cost and economic burden, prevention ofinformed discussions with HCPs, and the potential f